RECLAIMING AGENCY: AI + THE POWER OF NARRATIVE MEDICINE
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BETH BLOG

1/5/2021

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Beth Hopkins is a fellow artist researcher and friend. We are both currently part of a peer group called the BARP'S (Bethlem Artist Researchers Peer Group)

​There are many overlaps in our work, so we sometimes record informal chats sharing our findings, ask questions and generally get lost in  conversation. 

Here we talk about this project and how it connects to other work that we are currently involved in: 
find out more abour The Mental Health and Justice Project
read about / see beth's work in the lancet
Picture
Image Credit: Beth Hopkins. 

AUTHOR: BETH & SARAH

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BETHLEM ARTISTS RESEARCH PEER GROUP

18/3/2021

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BETHLEM ARTISTS RESEARCH PEER GROUP


​Today Anna was welcomed into  our weekly drop in.

Some of the interesting themes that arose from the discussion were: 

- Phobia of data (the narrative surrounding this) 
- The title: Electronic Patient Journey system
​(great name indeed!) 
- The parallels with deconstructing and reconstruction in my art practice and with the data (a process of learning for both the machine and I?) 
- Asking questions in multiple ways in order to be more inclusive. 
- The idea of the value model - looking at pros vs cons of documenting narrative in different ways
- Being given the option in the moment to document your own story. 
- Editorial / shorthand/ note taking 
- Offering confirmation that you have understood what someone tells you (a classic teaching technique and also used in metacognition testing) “so what I hear is..... is that correct?” 

Picture
Image: Sarah Carpenter darkroom experimentation
​

AUTHOR: SARAH

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11.01.21

11/1/2021

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KINGS COLLEGE LONDON ONLINE COURSE:


"…both art and science require us to look closely, and carefully; and both have the potential to reveal a new understanding of our world."
John O'Shea, Associate Director
(Science Engagement), Culture


The thing that I found an exciting about course was the way in which artists were given equal status to scientists, researchers and other professionals.

Artists were seen as valuable for being skilled at asking questions, challenging things, seeing things from fresh perspectives, exploring and expanding upon ideas, and opening up dialogue/ conversation.

The course was broken down into the 4 C's:

  • Creativity
  • Communication
  • Collaboration
  • Critical Thinking

In terms of anthropology, these are the skills that drive human evolution, so very important then!

During the course, the idea of learning through failure ("#failbetter") was a message that resonated with me. Productive failure, perseverance and a focus on process (all important elements of my creative practice) are seen as integral for innovation.

The course also touched upon the function of artists in research. I've been exploring this extensively with the Bethlem Gallery within an art in research peer group and through recent projects such as 'Art and Value' and the 'Mental Health and Justice' project.Within this peer group, we have been interrogating the notion of artists being used simply to visualise the work of researchers, rather than being given access to the scientific, academic and clinical space, where we could be of value posing new questions and exploring possible creative solutions.

How does this relate to our project? My work with Anna is looking at redressing the balance between clinician and patient and simultaneously, together, we are exploring the relationship between artist and researcher (a great term used within the course was
"blended approach"). I hope to develop my own practice during this residency by holding this in mind throughout.
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image: 'Know yourself" by Sarah
During the course we also explored the idea of audience knowledge base, and how important it is to give people an overview of any background/ historical information that they may need to know in order to make sense of what is being discussed. 

The dialogue vs deficit model was explained: 


Deficit: Information given one way from scientist to the public to enlighten them.

Dialogue: The public play a more active role asking questions and responding to answers in order to formulate their own understanding and opinions.  The scientist remains the expert, but they share their knowledge openly.

I would suggest that currently within Clinical Health Records, the deficit model is being used; information is only being fed into the system by clinicians. If the dialogue model was in place, the patient could provide their own narrative, and are, after all, experts in their own experience.

AUTHOR: SARAH

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    Here you will find blog posts by both Anna and Sarah 

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